Showing posts from April, 2012

Festivals for the (mildly) disabled

I have Charcot-Marie-Tooth Disease, I am a mother and I work full time as an IT Manager. CMT has probably shaped who I am the most as it’s been with me the longest, although it was not diagnosed until I was 36, I had been showing symptoms since my early teens and I had had some surgery on my feet in my twenties. My hands’ clawing was at first assumed (by me) to be related to my job and excessive computer use but a keen neurologist said that as soon as he saw me walk across the room he knew I had CMT!  My main symptoms are weakness, tiredness and poor balance.     CMT certainly doesn’t define me though. I am a keen camper and  part time festival hippy. Every summer I can hardly wait for the weather to be good enough to tempt me out in my tent. I am a minimalist Glamper! No electricity hook up but plenty of bunting, solar powered fairy lights and flowery deckchairs. My husband doesn’t share my camping bug so I camp with my 13-year-old daughter.   To ensure I can get the
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